Friday’s Guilty Pleasure for 9/27/2013

I’m going to go back to the idea that when you look good you feel good for this week’s Guilty Pleasure – Dry Shampoo.

Can of Dove Dry Shampoo on windowsill

Dove Dry Shampoo Is my favorite so far. It’s not a necessity, but it’s close.

Anyone whose life gets crazy busy from once in a while can appreciate the benefits of a product that can refresh your hair without having to wash it. But for anyone with an illness where pain, fatigue, stiffness or mobility problems makes washing your hair on a daily basis a nearly impossible task, dry shampoo can be a life saver.

I can remember my older cousins using dry shampoo years ago, and it was less than appealing. Today’s dry shampoos nothing like those. I’m not going to go into all detail about what it does and how it works. The basic concept is that it absorbs oils, while it adds volume and light fragrance.

You can get them for any hair type or texture. There are sprays that are dry and some that make your hair a little damp. My best suggestion is to do a little research. Chances are your favorite magazine or website has tested dry shampoos or done a survey of readers on them and can offer some great insight.

My personal favorite is from Dove. It’s affordable and works great. Some people may not think of dry shampoo as a guilty pleasure, but when you’re living on a tight budget and have to make every penny count anything that isn’t a necessity is a guilty pleasure. Dry shampoo isn’t a necessity (yet), but it’s getting there.

If you have an idea for next week’s Guilty Pleasure – or if you would like to be the special Guest Blogger and write next week’s Guilty Pleasure post, drop me a line here! I would LOVE to hear i ideas. Especially all you Spoonies and Chronic Babes – what are the those little guilty pleasures that make the bad days a little better? Let’s share and help each other!

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Having A Moment

Is the glass half empty or half full? The pess...

Is the glass half empty or half full? The pessimist would pick half empty, while the optimist would choose half full. I HAVE SJORGERN’s – it reminds me how dry my mouth is! (Photo credit: Wikipedia)

I want to say it was another bad day, or that it was another day in purgatory or one of the other hundred things running through my head right now, but I don’t want to sound pessimistic. Generally I’m not a pessimistic person. But now and then, and I think it’s pretty true of anyone with a chronic illness or unemployed or both, you have A Moment.

You know what I mean. Where you feel sorry for yourself. Where you feel like things will never get better. The enormity and scariness and suckiness of everything going on descends on you and clings to you like a wet, cold bathing suit you have nowhere to change out of late at night. Always at night. Usually while you’re alone in the dark and the only sound is that voice in your head reminding you of all the things you’ve done to get yourself into this predicament and telling you all the reasons you’re not good enough to get out of it. Yeah, A Moment.

I’m having myself one now. I think I’ve got some pretty valid reasons for having one, things that are actually good to discuss in blog posts, I’m just not in a place to write those right now. I’m in a trying to make lists of things to do to prove to myself that I can make things better kind of place.

I know this will pass. Hopefully soon. I’m pretty good at talking myself through these Moments. But I wanted to come here and post about it. This is the kind of thing I want to make sure we talk about as a community, the kind of thing we can share and support each other through. We all have Moments, and you know what? It’s ok.

Personally, I think it’s ok to have A Moment once in a while. Life sucks sometimes. Get mad. Get sad. Don’t keep it bottled up. Let it out. Let it go. Then let’s go figure out what to do to make things as good as we can. Acknowledge the feelings, be upset and then keep going.

I’m talking more about the Blues, or a case of the Mean Reds as Holly Golightly put it in Breakfast at Tiffany’s. If every moment is A Moment for you, then please, talk to your doctor or a mental health professional. Depression is something different. Depression is serious. Depression lies. Depression is a beast,  and I’m 100% behind anyone who wants help battling it. Moments can be lying bastards too, but they’re a lot easier to beat into submission. If you’re having trouble, please get help.

For me, just talking about having A Moment helps. Acknowledging that this is what this is, just A Moment in time. This will pass. This Moment is not all that I am. It may be a bad moment, brought on by a string of not so great moments, but is just A Moment. Things will get better, somehow. Even if it feels impossible now, they will get better.

I truly hope none of you are having A Moment, but if you are, you are not alone. It’s ok. Things will get better. We will get through it.

I’m already feeling 100 times better than I did when I started this just by writing about it. If you have any words of encouragement for someone having a moment, or want to talk about what you do feel better when you’re having A Moment, I would love for you share in the comments below.

If you need help or to talk to someone right now, call 1-800-SUICIDE, visit the National Hopeline Network, or CrisisChat (they provide online emotional support, crisis intervention, and suicide prevention services).

Remember, even in your worst moments my Friend, you are not alone.

Friday’s Guilty Pleasure for 9/20/2013

Nutella

Nutella (Photo credit: Wikipedia)

I am sticking with food for this week’s Guilty Pleasure, and it is one of my biggest – Nutella!

Chocolately. Hazelnutty. Gooey. Yummy….and as I am sure many of you will agree, highly addictive.

Nuttella goes with just about everything. Pretzels dipped in Nuttela? Amazing. Nutella and bananas? Unbelievable. Nuttella on warm toast? One of the best things I found for settling my stomach when meds are messing with it. Nutella hot chocolate? Warm velvety heaven in a mug. About the only thing I don’t love it on is straight-up on ice-cream, maybe mixed as some sort of sauce, but just scooped out and slathered on top it just doesn’t work for me.

What makes it a guilty pleasure and not just a pleasure? The price! Nutella is like chocolate gold or something. The last jar my husband bough cost almost $7, and this is in a location where the cost of living and things in general is a lot lower than where we lived just a few months ago. I have no idea what makes it so expensive….Specially trained woodland creatures who travel deep into the forest in search of just the right hazelnuts? Fairies who actually secretly collect kisses from babies to blend in with chocolate during the final step of the mixing process? I don’t know, but whatever it is, it must be spectacular!

I’ll admit that we have tried a few of the other brands of chocolate hazelnut spread knock-offs who are trying to weasel in to the Nutella craze but they are much less expense. Let me tell you my friends, they taste it! I’ve told my husband we could switch, but first let’s try rationing it. Limiting our intake to one piece of toast daily, or only eating once every several days if it’s used for hot chocolate or a sauce.

The healthy student's breakfast: a banana with...

The healthy student’s breakfast: a banana with Nutella…I wonder how many bananas you need for 5 tons of Nutella… (Photo credit: Wikipedia)

Nutella is in such demand that someone went so far as steal it. A lot of it. A. LOT. 5 metric tons of the stuff as a matter of fact. Don’t get me wrong, I love Nutella, but not 5 metric tons worth! And what would you do with it all? I would think it would take even the hungriest of teenage boys and a Sorority facing a string of break-ups during mid-terms more than a few days to eat the evidence, so where would you put it? And like I said, the gooey confection is worth its weight in gold – you could just about retire if you sold it! So where the heck is it? If one of my tens of loyal readers happens to be the Nutella Bandits, I admire your creativity and your hutzpah. Should you ever want to send me a chocolate hazelnut gift, you know how to reach me.

How many Nutella lovers do I have out there? How do you like to eat it? I only mentioned a few of my favorite, there are a ton of different ways to bake with it (I have pinned so many cookie recipes to try that I think I need to take out a personal loan to pay for all the Nutella – or find that stolen stash!). Share some of your favorites in the comment section below.

If you have an idea for next week’s Guilty Pleasure – or if you would like to be the special Guest Blogger and write next week’s Guilty Pleasure post, drop me a line here! I would LOVE to hear your ideas. Especially all you Spoonies and Chronic Babes – what are the those little guilty pleasures that make the bad days a little better? Let’s share and help each other!

Putting My Life in the Hands of Someone New

English: Cartoon of 1906. The physician has pl...

I don’t think my appointment will go like this, but with a new doctor you never know what night happen! Cartoon o

The time has finally come for my first appointment with my new rheumatologists. I’m not comfortable saying who it is, at this point at least, so for now I’ll just call it The Center.

I’m really pretty excited about the appointment. One of the things I hated about moving was leaving my old rheumatologist. I loved Dr. O. She was kind, compassionate, tough when I needed it, and actually responded to phone calls and emails when I had questioned or needed help. The consolation was I moving to a city with a well-known and highly regarded center for the treatment of Lupus and other autoimmune disorders. The Center has doctors that are considered some of the best. They are some of the leaders in research and treatment in the country — they publish papers, speak on panels, guest edit medical journals, in short these are the people who are cutting edge of treatment and research for autoimmune disorders like Lupus, RA, Sjorgern’s Syndrome and others. If I’ve got to find a new place to go for treatment this seemed like the place to go!

But, as anyone who’s ever gone to see a new doctor and been greeted with something like, “And what makes you think you’re sick?” you know it’s not easy to walk into a new doctor’s office. There’s always that bit of fear in the pit of your stomach. And that part of you that gets ready to defend yourself or for a fight.

It shouldn’t be that way. I know that. You know that. But that’s that the reality.

You would think that a place that specializes in people who other doctors have refused to believe (because, come on, if you have the kind of chronic illnesses that would bring you to the doors of a place like this, a doctor somewhere told you that it was all in your head) will be different. You’d think that they’ll be kind. You’d think that they’ll be believe you. But still, there’s that little bit of fear.

I’ve had the pages and pages of patient background forms to fill out for weeks. They’re sitting on my dresser looking at me. Even as I type they are staring me down. I just haven’t been able to finish them. I’ve done a few questions at a time, just not buckled down and do it all. I’m sure it’s all a mental thing.

Let’s face it, I’ve been on a somewhat rapid decline the last year. There is a very good chance there is another diagnosis in my future – the one I’ve always known would probably come eventually and half dread, half look forward to just so it stops hanging over my head. If anyone can jump into the mess that is me with suggestions that might actually help, it’s these people. Then why am I so scared?

It’s the fear of the unknown. It’s the idea of putting my life in the hands of someone new. Even if these are some of the best hands around, and I am incredibly lucky to be able to be a patient at The Clinic. I think this is just one of those times I need to have faith.

 

Something to Say Thank You

Something to Say Thank You

I really only started to post regularly here just over a month ago and I can’t believe the number of followers I’ve gotten and the number of visitor who will hopefully be followers soon. I realize that these aren’t record breaking numbers, but the fact that anyone wants to listen to what I have to say means more than you’ll ever know. So thanks for stopping by. Thanks for following. And, if you’re not following you should…this blog has been proven to regrow hair****.

****This blog cannot guarantee hair growth. Results may vary. Consult a doctor before beginning any hair growth regiment.****

Friday’s Guilty Pleasure – Ice Cream

Maybe it’s predictable. Maybe it’s a guilty pleasure for a lot of people. But, one of my all time favorite guilty pleasures is ice cream. Specifically vanilla ice cream with chocolate syrup. Simple. Elegant. Yummy.

Vanilla ice cream with chocolate sauce in blue bowl

Ice cream is one of my favorite guilty pleasures.

I’m not going as far as a sundae. (If we’re talking sundaes I have to go with the hot fudge sundae.) I’m talking about dish of ice cream for medicinal purposes. You know what I mean, after a rough day a little ice cream can make the world a much better place. It’s one of the greatest pick-me-ups there is!

My love of ice cream goes way back. I started eating it at night with my Dad when I was a little girl and it’s a habit I carry on today. I only eat a tiny serving, just enough for taking meds with (unless it’s been a really bad day), with just a little chocolate sauce (or more than just a little if it was a bad day).

I don’t have many vices. I’ve never smoked, I rarely drank and now with all the medications I can’t drink. Ice cream and Coca-Cola are my vices (Coke is another guilty pleasure for another time!). I think like any other guilty pleasure, as long as you don’t go insane constantly then it’s ok. A lot of people may not agree. And that’s ok too.

The way I look at it, one of the purposes of a guilty pleasure is make you feel better. There are so many things about chronic illness that make you feel bad physically and emotionally that if a couple of ounces of ice cream and chocolate make you feel a little better, a little more normal, a little more like you can face the world then it’s a good thing.

So what are your food guilty pleasures? Not necessarily comfort foods, but that something you know you probably shouldn’t eat but you just can’t help it. I’d love to hear about it below!

If you have an idea for a guilty pleasure post, or if you’d like to guest write a guilty pleasure post, drop me a line here and let me know what you’d like to do!